That is what the crazy hair specialist told me after he handed me the piece of paper he had written "trichothiodystophy". This was the diagnosis that he thought Drew had but wasn't sure because he didn't have the right type of microscope. Drew was 2.5 and Madison was 4 days old and still in the NICU at Presby Plano. So what is a 4 day, post-partum mommy going to do when she receives this kind of news? Cry... but do you know what else I did? I ... GOOGLED!
I understand why the guy told me not to google. You can find a lot of scary stuff on the web and I found alot of SCARY stuff. But after scary I found "F.I.R.S.T". which is the Foundation for Ichthyosis and related skin types. This group led me to Dr. Kramer, Dr. D. and the best of the best, Debby T. at the NIH. What if I had listened to that "specialist...
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