I am not a nurse

I am not a nurse… I don’t think I ever thought I would be a nurse and I don’t play one on T.V.  I had a friend tell me today that I have earned my “honorary” nursing degree.  No offense, but I do not  want the honorary title of R.N. but this Hizentra infusion thing has made me wish I had some form of medical training!  Why am I freaking out about doing this infusion at home, you ask?  Do I have a fear of needles? Nope, I do not! Do I have a problem with sticking my child with 2 needles?  Nope, because I don’t even have to do that because she does it herself. What makes me cry (literally) is having to get the medicine from 2 vials to one syringe.  And here is why, my problem is that I am Rachel Ray (a mess in the kitchen) and Hizentra needs me to be Giada De Laurentiis ( a little more precise)

My example; I decided that I would prepare Boston Cream Pie Cupcakes for my dad’s birthday.  This is his all time favorite dessert!  I made the butter cream cake per the instructions and then started on the vanilla cream.  By the time the cake had completed cooking… ooops, I had a little problem getting the cake out of the pan.  Being the flexible person that I am, I decided that these Boston cream pie cakes would be Boston Cream Pie Balls!  Let me take you back to Hizentra… you can NOT make Hizentra cream pie into Hizentra cream BALLS!  You have to measure precisely; you have to get all the bubbles out to make sure your measurement is accurate.  I have to measure the content of one vial and then measure half a vial of the other one and throw away approximately 250$ worth of medicine at each infusion. There are so many steps of preparing the infusion that I don’t even worry about the actual infusion. Did I mention that I have 2 Epi pens and a sharpies box but that I am not a nurse and I don’t cook that great either…

Dear Hizentra!

You have a big responsibility starting tomorrow, Hizentra.  I hope you are up for the challenge!!!! Tomorrow is Madison's first day of school since April 2011. She still is not 100% recovered from her last infection that she started on Sept. 1st but we are sending her to school regardless.  How do I know you ask???. Well, I have to know this stuff. I keep up with the "which one's", the "what kinds" and the how many's" and I had to have a signed medical release saying that she can go back to school. 

Hizentra, I am looking forwared to you doingy your job and in 3 weeks when we do blood work, I am expecting Madison to be healthy, still in school and for her blood work to show us exactly what we are paying you for!!!!